We have put together some links that you might find useful. If there are any other links that you use and would like to see included in this list please contact us.
Juvenile arthritis specific sites:
CCAA (Childrens Chronic Arthritis Association)
CCAA is a national charity run by parents and professionals to provide help and information for children with arthritis, their families and professionals involve in their care.
Tel: 01905 745 595
PIP - Partners in Paediatrics
PIP is a partnership of organisations concerned to improve the quality and accessibility of services for children across the areas served by the participating organisations.
BSPAR (British Society for Paediatric and Adolescent Rheumatology)
BSPAR is a specialist society linked to the RCPCH (Royal College of Paediatrics and Child Health), with membership open to all health care professionals involved in the care of children and adolescents by Paediatric Rheumatology departments. BSPAR aims to advance paediatric rheumatology care in the UK and Ireland.
SNAC (Scottish Network for Arthritis in Children)
The aim of SNAC is to provide a national support network for children with arthritis and their families through the provision of factual, practical and emotional support. It aims to pull together the wider community of affected children in Scotland as well as raise public awareness of childhood arthritis.
Tel: 07504 609 510
Youth Health Talks - Arthritis
Youth Health Talk is a website about young people's real life experiences of health and lifestyle. Watch, read and hear young people talking about their experiences and join specific forums.
Tel: 01865 201 330
JIA@NRAS aims to provide information and support for people affected by juvenile idiopathic arthritis (JIA) and rheumatoid arthritis (RA), their families, friends and carers, as well as health professionals. Part of the National Rheumatoid Arthritis Society.
Tel: 0845 458 3969
General Arthritis and Rheumatology sites:
Versus Arthritis - Charity number - 207711
Copeman House, St Marys Court, St Marys Gate, Chesterfield, S41 7TD
Main number – 0300 790 0400
Email - firstname.lastname@example.org Website - https://www.versusarthritis.org/ Helpline – 0800 520 0520 (opening hours 9am – 6pm Mon-Fri.) Email - email@example.com
National Rheumatoid Arthritis Society provides support and information for people with Rheumatoid Arthritis and Juvenile Idiopathic Arthritis, their families, friends and carers, and health professionals with an interest in Rheumatoid Arthritis.
Tel: 0800 298 7650
Arthritis Foundation is an American organisation that helps people take control of arthritis by providing public health education.
Wider support sites:
Contact a Family support the families of disabled children.
Tel: 0808 808 3555
Making Contact is a service provided by Contact a Family. It allows you to share your experiences and contact other families that are in a similar situation or going through similar experiences to your own.
Tel: 0808 808 3555